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Lee, who left Saints to join Warrington in 1997, has already used his profile as one of British rugby league's top players to help, appearing in the charity's 2011 calendar along with a number ofHe also supported a recent Just Giving competition via blogging site Twitter, raising awareness of the disorder and an additional 500 for the research projects.

As the syndrome takes hold girls lose acquired skills, normal movement and speech. They are left unable to communicate or use their hands to hold objects.

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Rugby ace on Beth's 'team' From St Helens Star

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deliver treatment in a timeframe which is meaningful for Beth and all the other girls and women living with Rett Syndrome today.

Over time, girls Lv Men Shoes 2016

who have learned to walk often lose that ability as well. Loss of motor control sets in, essentially locking these girls into bodies that won't work, leaving them without the

It is a debilitating disorder, said to affect 1 in 15,000 females, with symptoms beginning in previously healthy little girls just after they have learned to walk and say a few words.

She is well known to the rugby star. When Warrington held the Challenge Cup, Lee visited Beth with the trophy and he carried her on to the pitch when she was a club mascot.

Andy, a professional at Mersey Valley Golf Club and founding trustee of RSRT UK, added: "I've been friends with Lee for many years now and he's met Beth and understands the immense difficulties

"With his drive and determination I'm sure the charity will go from Louis Vuitton Shoes New Collection

"Rett Syndrome is not a well known condition and as a charity, we need to increase the profile of both the disease itself and the potential for a cure in order to raise the vital funds we need to

Among the complications are disordered breathing, severe digestive problems, orthopaedic abnormalities (such as fragile bones), extreme anxiety, seizures, impaired cardiac and circulatory function

ability to make purposeful movements.

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Announcing that he is an ambassador for the charity, father of two Lee, 33, said: "Having played rugby league all my life, I can't Palladium Leather Boots Men

that she and all the girls with Rett Syndrome face each and every day.

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strength to strength and if I can do my little bit, hopefully we Lacoste Shoes Canada can get awareness about Rett Syndrome out there."

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imagine what it must be like to have a body that doesn't work

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